Event to boost new Down syndrome family network

Hoping to reach out to other families affected by Down syndrome, a team of volunteer families have come together to form The Central Missouri Down Syndrome Family Network.

It will hold a kickoff event from noon-3 p.m. on Sunday in north Jefferson City at Turkey Creek Golf Center, 1616 Oil Well Road.

The group, which is a subsidiary of the Kansas City Down Syndrome Guild and the Down Syndrome Association of Greater St. Louis, was formed to connect families who have a member with Down syndrome, said Kathleen Basi, volunteer and mother of a 5-year-old with Down syndrome.

For some time, a group of families representing a variety of disabilities had been meeting, but Basi said she and other parents want to form a more inclusive group to help families of Down syndrome patients of all ages.

“We have had certain frustrations,” Basi said of her family’s experiences. “We know a few families who have children with Down syndrome, but we know there are more, and we often feel like we are off the radar.”

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For more information about The Central Missouri Down Syndrome Family Network, call Basi at 573-449-8342.

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