April 19, 2014
Mary Kaye Richter, left, Founder of National Foundation for Ectodermal Dysplasias, visits with her son Chuck while he works in the barn at their family soybean and corn farm in Trenton, Ill.
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When Mary Kaye Richter's son was diagnosed, she could only find a few paragraphs about hypohidrotic ectodermal dysplasia, which inhibits the growth of teeth, hair and sweat glands. To learn more, she converted a storage room of a church in Mascoutah, Ill., into the headquarters for a foundation that she established.
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