April 19, 2014
In this March 26, 2014 photo, Sarah Yaroch, of Waterford, Mich., holds her five week-old son Andrew Yaroch, in St. Louis. Andrew is the third baby worldwide to participate in a clinical trial to treat a rare genetic disorder called hypohidrotic ectodermal dysplasia, which inhibits the growth of teeth, hair and sweat glands. (AP Photo/St. Louis Post-Dispatch, Stephanie S. Cordle)
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When Mary Kaye Richter's son was diagnosed, she could only find a few paragraphs about hypohidrotic ectodermal dysplasia, which inhibits the growth of teeth, hair and sweat glands. To learn more, she converted a storage room of a church in Mascoutah, Ill., into the headquarters for a foundation that she established.
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