Lyme disease may be more prevalent than we think
The CDC says the number of reported cases may not even be close
Monday, August 26, 2013
Each year, more than 30,000 cases of Lyme disease are reported to Centers for Disease Control and Prevention (CDC), making it the most commonly reported tick-borne illness in the United States.
But that number could be off by a country mile.
A preliminary estimate released recently by the CDC indicates that the number of Americans diagnosed with Lyme disease each year is actually around 300,000 -- roughly 10 times higher than the yearly reported number. That estimate was presented recently in Boston at the 2013 International Conference on Lyme Borreliosis and Other Tick-Borne Diseases.
Lyme disease studies
The early estimate is based on findings from three CDC studies that use different methods, but all aim to define the approximate number of people diagnosed with Lyme disease each year.
The first project analyzes medical claims information for approximately 22 million insured people annually for six years, the second project is based on a survey of clinical laboratories and the third project analyzes self-reported Lyme disease cases from a survey of the general public.
The new estimate supports studies published in the 1990s indicating that the true number of cases is between 3- and 12-fold higher than the number of reported cases.
“We know that routine surveillance only gives us part of the picture, and that the true number of illnesses is much greater,” said Paul Mead, M.D., M.P.H, chief of epidemiology and surveillance for CDC’s Lyme disease program. “This new preliminary estimate confirms that Lyme disease is a tremendous public health problem in the United States, and clearly highlights the urgent need for prevention.”
CDC continues to analyze the data in the three studies to refine the estimates and better understand the overall burden of Lyme disease in the United States and will publish finalized estimates when the studies are complete. Efforts are also underway at CDC and by other researchers to identify novel methods to kill ticks and prevent illness in people.
“We know people can prevent tick bites through steps like using repellents and tick checks. Although these measures are effective, they aren’t fail-proof and people don’t always use them,” said Lyle R. Petersen, M.D., M.P.H, director of CDC’s Division of Vector-Borne Diseases. “We need to move to a broader approach to tick reduction, involving entire communities, to combat this public health problem.”
This community approach would involve homeowners trying to kill ticks in their own yards, and communities addressing a variety of issues. Among these issues are rodents that carry the Lyme disease bacteria, deer that play a key role in the ticks’ lifecycle, suburban planning and the interaction between deer, rodents, ticks, and humans. All must be addressed to fight Lyme disease effectively.
Most Lyme disease cases reported to CDC through national surveillance are concentrated heavily in the Northeast and upper Midwest, with 96% of cases in 13 states. Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected blacklegged ticks. Typical symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system.
What to do
CDC recommends people take steps to help prevent Lyme disease and other tickborne diseases:
- Wear repellent
- Check for ticks daily
- Shower soon after being outdoors
- Call your doctor if you get a fever or rash
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